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2023年1月 第26卷 第1期 http: //www.chinagp.net E-mail: zgqkyx@chinagp.net.cn ·97·
• 论著 •
A 型主动脉夹层患者及其家属对就诊、
转诊体验的质性研究
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栗林 ,徐娜 ,武文贤 ,赵青 ,郭万鹏 1 查看原文
【摘要】 背景 主动脉夹层是最危急的心血管疾病之一,快速、有效地就诊及转诊是 A 型主动脉夹层患者生命
安全得到切实保障的前提。现阶段国内外关于 A 型主动脉夹层患者就诊、转诊的研究多为调查性研究,A 型主动脉夹
层患者及其家属在就诊、转诊过程中的真实体验及需求值得关注。目的 了解 A 型主动脉夹层患者及其家属在就诊、
转诊过程中的经历及心理体验,挖掘其需求,为完善我国主动脉夹层救治体系提供参考。方法 采用目的抽样法,选
取 2021 年 9—12 月于山西省某三级甲等医院心脏大血管外科就诊的 15 例 A 型主动脉夹层患者及其家属为研究对象,
采用半结构式访谈法收集定性资料,运用 Colaizzi 现象学资料 7 步分析法对资料进行分析,并提炼访谈主题。结果 A
型主动脉夹层患者及其家属对就诊、转诊过程的体验可归纳为 3 个主题:不同阶段的内心体验(发病时的困惑,就诊、
转诊过程中的复杂内心活动,术前的内心冲突),主动脉夹层诊疗系统存在的问题(诊疗质量待改进,就医程序存在“短
板”),患者及其家属的真实需求(对疾病知识与获取途径的需求,经济相关的需求)。结论 A 型主动脉夹层患者
及其家属在就诊、转诊过程中内心体验复杂,存在多重需求,并面临诸多困难,我国主动脉夹层诊疗体系有待进一步
完善。未来应通过开展主动脉夹层规范化诊疗培训、形成主动脉夹层诊疗绿色通道、加强相关知识的普及教育、完善
资助体系等路径,提高主动脉夹层急救与诊疗质量。
【关键词】 主动脉夹层;主动脉瘤;患者;家属;就诊;转诊;体验;定性研究
【中图分类号】 R 543.16 【文献标识码】 A DOI:10.12114/j.issn.1007-9572.2022.0499
栗林,徐娜,武文贤,等 . A 型主动脉夹层患者及其家属对就诊、转诊体验的质性研究[J]. 中国全科医学,
2023,26(1):97-103.[www.chinagp.net]
LI L,XU N,WU W X,et al. Healthcare-seeking and referral experiences in patients with type A aortic dissection and
their families:a qualitative study[J]. Chinese General Practice,2023,26(1):97-103.
Healthcare-seeking and Referral Experiences in Patients with Type A Aortic Dissection and Their Families:a
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Qualitative Study LI Lin ,XU Na ,WU Wenxian ,ZHAO Qing ,GUO Wanpeng 1
1.Department of Cardiovascular Surgery,Shanxi Bethune Hospital(Shanxi Academy of Medical Sciences,Tongji Shanxi
Hospital),Third Hospital of Shanxi Medical University,Taiyuan 030032,China
2.Operating Room,Shanxi Bethune Hospital(Shanxi Academy of Medical Sciences,Tongji Shanxi Hospital),Third Hospital
of Shanxi Medical University,Taiyuan 030032,China
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Corresponding author:WU Wenxian;E-mail:wuwenxian000@163.com
LI Lin and XU Na are the first authors
【Abstract】 Background Effective and rapid healthcare-seeking and referral are prerequisites that ensure the life safety
of patients with type A aortic dissection(TAAD),one of the most critical cardiovascular diseases. Existing studies on healthcare-
seeking and referral experiences of patients with TAAD and their families are mostly quantitative,while the real experiences and
needs of these patients and their families deserve attention. Objective To explore the real experiences,feelings and needs of
patients with TAAD and their families during healthcare-seeking and referral process,providing references for improving the
treatment system of aortic dissection in China. Methods Purposive sampling was used to recruit TAAD patients(n=15)and
their families from Department of Cardiovascular Surgery,Shanxi Bethune Hospital from September to December 2021. Their
experiences,feelings and needs during healthcare-seeking and referrals were collected using a semi-structured interview,and
1.030032 山西省太原市,山西白求恩医院(山西医学科学院 同济山西医院) 山西医科大学第三医院心脏大血管外科
2.030032 山西省太原市,山西白求恩医院(山西医学科学院 同济山西医院) 山西医科大学第三医院中心手术部
* 通信作者:武文贤;E-mail:wuwenxian000@163.com
栗林和徐娜共同为第一作者
本文数字出版日期:2022-10-28