《儿童姑息治疗中睡眠问题的国际共识：铺平道路》解读

doi:10.12114/j.issn.1007-9572.2025.0387

中国全科医学 ›› 2026, Vol. 29 ›› Issue (28): 4047-4057.DOI: 10.12114/j.issn.1007-9572.2025.0387

《儿童姑息治疗中睡眠问题的国际共识：铺平道路》解读

沈碧玉¹, 路佳慧¹, 李馨², 李惠玲³, 李春波⁴, 樊盼玉¹, 凡帆¹, 马晨欢⁵, 王广海⁵^,⁶^,⁷^,⁸^,^*()

1．200127　上海市，上海交通大学医学院附属上海儿童医学中心护理部
2．999077　香港特别行政区，香港大学心理学系
3．215006　江苏省苏州市，苏州大学医学院护理学院
4．200127　上海市，上海交通大学医学院附属精神卫生中心
5．200127　上海市，上海交通大学医学院附属上海儿童医学中心儿科转化医学研究所
6．200127　上海市，上海交通大学医学院附属上海儿童医学中心发育行为儿科
7．200127　上海市，上海交通大学医学院附属上海儿童医学中心上海市儿童脑智发育重点实验室
8．201602　上海市，上海脑科学与类脑研究中心

收稿日期:2025-11-19 修回日期:2026-01-13 出版日期:2026-10-05 发布日期:2026-09-02
通讯作者: 王广海
作者贡献：
沈碧玉、李馨、李惠玲、李春波、王广海提出研究思路，指导、设计研究方案，搭建论文框架；沈碧玉、路佳慧、凡帆、樊盼玉、马晨欢负责论文初稿撰写，完成文献检索与标注；沈碧玉、王广海负责论文终稿修订，对论文质量负责。
基金资助:
国家自然科学基金面上项目(82071493，82073568); 上海市卫生健康委员会卫生健康学科带头人项目(2022XD056); 上海申康医院发展中心管理研究项目(2024SKMR-29)

Interpretation of International Consensus on Sleep Problems in Pediatric Palliative Care: Paving the Way

SHEN Biyu¹, LU Jiahui¹, LI Xin², LI Huiling³, LI Chunbo⁴, FAN Panyu¹, FAN Fan¹, MA Chenhuan⁵, WANG Guanghai⁵^,⁶^,⁷^,⁸^,^*()

1. Department of Nursing, Shanghai Children's Medical Center, Shanghai Jiao Tong University School of Medicine, Shanghai 200127, China
2. Department of Psychology, the University of Hong Kong, Hong Kong 999077, China
3. School of Nursing, Suzhou Medical College of Soochou University, Suzhou 215006, China
4. Shanghai Mental Health Center, Shanghai Jiao Tong University School of Medicine, Shanghai 200127, China
5. Institute of Pediatric Translational Medicine, Shanghai Children's Medical Center, Shanghai Jiao Tong University School of Medicine, Shanghai 200127, China
6. Department of Developmental and Behavioral Pediatrics, Shanghai Children's Medical Center, Shanghai Jiao Tong University School of Medicine, Shanghai 200127, China
7. Shanghai Key Laboratory of Child Brain and Development, Shanghai Children's Medical Center, Shanghai Jiao Tong University School of Medicine, Shanghai 200127, China
8. Shanghai Center for Brain Science and Brain-Inspired Technology, Shanghai 201602, China

Received:2025-11-19 Revised:2026-01-13 Published:2026-10-05 Online:2026-09-02
Contact: WANG Guanghai

摘要/Abstract

摘要： 在儿童姑息治疗（PPC）领域，睡眠问题作为常见的症状之一，却因关注不足而未得到妥善处理。当前，相关临床指导方针与规范的缺失问题亟待解决，以填补这一领域在睡眠问题管理上的空白。基于此，国际儿童睡眠与姑息治疗专家组制订了全球首个《儿童姑息治疗中睡眠问题的国际共识：铺平道路》。该共识通过对相关研究进行系统评价和Meta分析，聚焦PPC中睡眠问题的定义、评估/测量、治疗三大主题，经过两轮德尔菲法汇总形成了53项共识建议，但该共识在覆盖所有异质性患儿群体及在中低收入国家的适用性上仍有所欠缺。本文就形成的全部共识进行解读并提出建议，以期为未来制订中国本土化的循证指南提供参考，提高中国PPC中睡眠问题管理的规范化水平。

关键词: 睡眠障碍, 睡眠问题, 姑息疗法, 儿童姑息治疗, 专家共识, 解读

Abstract:

Sleep problems, as a prevalent symptom burden in pediatric palliative care (PPC), remain inadequately addressed due to insufficient clinical attention. The current lack of standardized clinical guidelines and protocols urgently demands resolution to bridge the gap in sleep-related symptom management within this field. In response, the International Expert Panel on Pediatric Sleep and Palliative Care developed the inaugural global consensus, International Consensus on Sleep Problems in Pediatric Palliative Care: Paving the Way. This consensus employed systematic reviews and meta-analyses of existing evidence, focusing on three core themes: definition, assessment/measurement, and therapeutic interventions for sleep disturbances in PPC. Through a two-round Delphi process, 53 consensus recommendations were formulated. However, limitations persist regarding the applicability of these recommendations across heterogeneous pediatric populations and in low- and middle-income countries. This article provides a critical interpretation and suggestion of the consensus, aiming to inform the development of evidence-based, culturally adapted guidelines in China and enhance the standardization of sleep disturbance management within Chinese PPC practice.

Key words: Sleep disorders, Sleep problems, Palliative care, Pediatric palliative care, Expert consensus, Interpretation

中图分类号:

R 47

沈碧玉,路佳慧,李馨,等. 《儿童姑息治疗中睡眠问题的国际共识：铺平道路》解读[J]. 中国全科医学, 2026, 29(28): 4047-4057. DOI: 10.12114/j.issn.1007-9572.2025.0387.
SHEN Biyu,LU Jiahui,LI Xin, et al. Interpretation of International Consensus on Sleep Problems in Pediatric Palliative Care: Paving the Way[J]. Chinese General Practice, 2026, 29(28): 4047-4057. DOI: 10.12114/j.issn.1007-9572.2025.0387.

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《儿童姑息治疗中睡眠问题的国际共识：铺平道路》解读

Interpretation of International Consensus on Sleep Problems in Pediatric Palliative Care: Paving the Way

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