关键词: 帕金森病, 自我健康管理, 信度, 效度

Abstract: Background　Parkinson’s disease （PD） has different motor symptoms and non motor symptoms in diffenent patients,thus many unknown factors exist in its management,the quality of life of patients and their families is affected seriously.Therefore,it is particularly important to improve PD patients’ self health management ability.Objective　To develop a questionnaire for measuring PD patients’ ability of self health management and to test its reliability and validity.Methods　Through literature research method and unstructured interview,the contents of the questionnaire including item pool and dimensions were formulated,Delphi expert inquiry method was applied to formulate PD patients self health management questionnaire.By using convenience sampling method,64 cases of PD patients from the Fourth Affiliated Hospital of Nanchang University were investigated,37 cases of whom were reinvestigated again 1 week later.The expert authority coefficient （Cr） was used to judge the degree of expert authority;the variation coefficient and Kendall coefficient of concordance was used to judge the degree of coordination of expert opinion;the coefficient of internal consistency,test-retest reliability was used to evaluate questionnaire’s reliability;content validity index （CVI） and single and comprehensive correlation analysis method were used to evaluate the content validity;the factor analysis method was used to evaluate the structure validity.Results　Two rounds expert consultation’s Cr was 0.85 and 0.91 respectively.Two rounds of expert enquiry’s total variation coefficient was 0.141,0.049 respectively,and Kendall coefficient of concordance was 0.152,0.160 respectively.The Cronbanch’s α coefficient was 0.972,Guttman split half reliability coefficient was 0.863.Cronbanch’s α coefficient for dimension of emotion management,daily life management,medical management,and sports management was 0.923,0.964,0.916 and 0.991 respectively.Test-retest reliability was 0.899,the consistency coefficient Kappa value was 0.741,P=0.001.The CVI was 0.937,each item’s CVI ranged from 0.873 to 1.000.In 64 PD patients,emotional management dimension score was positively correlated with score of each item of emotional management dimension （P<0.05）:daily life management dimension score was positively correlated with score of each item of daily life management dimension （P<0.05）:medical management dimension score was positively correlated with score of each item of medical management dimension （P<0.05）:sports management dimension score was positively correlated with score of each item of sports management dimension （P<0.05）.Exploratory factor analysis showed that,KMO=0.903 and Bartlett’s test of sphericity χ2=1 137,P<0.01,which showed that data was suitable for factor analysis.Principal component analysis was used to extract the common factor,one factor with eigenvalue equal to or greater than 1.000 was extracted.Combined with the scree plot,a total of four common factors were produced,which could explain 60.629% of the total variation.Conclusion　The PD patients self health management questionnaire has good reliability and validity in the measurement of PD patients’ self health management.

Key words: Parkinson disease, Self health management, Validity, Reliability