The Current Status and Needs of Community-based Cancer Patients Management from the Perspective of Stakeholders

doi:10.12114/j.issn.1007-9572.2024.0608

Chinese General Practice ›› 2026, Vol. 29 ›› Issue (25): 3664-3669.DOI: 10.12114/j.issn.1007-9572.2024.0608

Special Issue: 肿瘤最新文章合辑；社区卫生服务最新研究合辑

• Original Research • Previous Articles Next Articles

The Current Status and Needs of Community-based Cancer Patients Management from the Perspective of Stakeholders

1. State Key Laboratory of Ultrasound in Medicine and Engineering, College of Biomedical Engineering, Chongqing Medical University, Chongqing 400016, China
2. Clinical Traditional Chinese Medicine College of Yangzhou University, Yangzhou 225002, China
3. Yangzhou Commission of Health, Yangzhou 225100, China
4. Yangzhou Hospital Affiliated to Nanjing University of Chinese Medicine, Yangzhou 225002, China
5. School of Public Health, Chongqing Medical University, Chongqing 400016, China
6. Yangzhou of Traditional Chinese Medicine Hospital, Yangzhou 225002, China

Received:2025-07-25 Revised:2026-03-03 Published:2026-09-05 Online:2026-08-11
Contact: DAI Xiaojun

利益相关者视角下社区肿瘤患者管理现状与需求研究

1．400016　重庆市，重庆医科大学超声医学工程国家重点实验室　生物医学工程学院
2．225002　江苏省扬州市，扬州大学临床中医学院
3．225100　江苏省扬州市卫生健康委员会
4．225002　江苏省扬州市，南京中医药大学扬州附属医院
5．400016　重庆市，重庆医科大学公共卫生学院
6．225002　江苏省扬州市中医院

通讯作者: 戴小军
作者简介:
作者贡献：
张静瑜负责研究主题选取、研究设计、数据分析、初稿撰写、格式审查和编辑；张钰、徐露、郑俊娣负责研究的调查开展；黎敏负责研究的数据管理、数据分析；聂宇贤负责研究的项目管理；陆新喜、石丘玲负责研究进度监督、论文编辑和审查；戴小军对文章整体负责。
基金资助:
国家资助博士后研究人员计划(GZC20233357); 重庆市自然科学基金项目(CSTB2022NSCQ-MSX0118); 2023年度扬州市重点研发项目（社会发展）(YZ2023091); 2024年国家中医优势专科建设单位项目(国中医药医政函[2024] 90号); 2022年全国名老中医药专家传承工作室建设项目(国中医药人教函[2022]75号)

Abstract

Abstract:

Background

Exploring a cancer management plan suitable for our national conditions by utilizing the convenience of community services is an urgent need to ensure the out-of-hospital management for patients with cancer.

Objective

To analyze the current status, needs, and challenges in community-based cancer patient management, providing information for the development of innovative models for cancer patient management in Chinese communities.

Methods

A total of 35 cancer patients and 23 community healthcare professionals were recruited for in-depth interviews on the current status and needs of community cancer patient management from September to November 2023. Thematic framework analysis was used for data analysis. While 14 key decision-makers were selected for focus group interviews on the implementation factors of community-led cancer patient management models in December 2023, and data analysis was carried out based on grounded theory research methods.

Results

Cancer patients in the community rehabilitation stage not only faced various physical discomforts caused by the disease and treatment, but also suffer from psychological distress and social isolation. However, they held a negative attitude towards the existing community management. Primary healthcare institutions had already implemented various cancer management practices in their daily work, but the content is fragmented and lacked integration. A community-led, personalized, and proactive cancer patient management model was expected by stakeholders, and the "burdens" and "benefits" brought by its implementation were concerns of key decision-makers.

Conclusion

Currently, the management of cancer patients in the community has not yet formed a complete system, and the health needs of cancer patients in the community have not been fully met. Community-led personalized and proactive cancer patient management can be the direction for further exploration.

Key words: Cancer, Community health services, Primary health care, Patient management, Stakeholder

摘要：

背景

利用社区便捷优势，探索适合我国国情的基层肿瘤患者管理方案，是保障肿瘤患者院外管理的迫切需求。

目的

从利益相关者视角多维度分析社区肿瘤患者管理现状、需求与挑战。

方法

2023年9—11月针对社区肿瘤患者管理现状与需求，对35例肿瘤患者和23名社区肿瘤管理医护人员进行深入访谈；2023年12月针对社区肿瘤患者管理模式核心要素，对14名肿瘤患者管理决策关键人士进行焦点小组访谈。分别采用主题框架法和扎根理论研究方法进行数据分析。

结果

肿瘤患者在社区康复阶段不仅面临疾病与治疗带来的各种生理不适，还伴随着心理上的困扰和社交上的隔离，且对现有基层卫生服务机构管理服务态度消极。基层卫生服务机构在日常工作中已开展多项肿瘤管理工作，但内容零散、缺乏有效整合。社区主导的个性化、主动化肿瘤患者管理被利益相关方所期待，模式所带来的"负担"和"效益"被肿瘤患者管理决策关键人士所关注。

结论

当前社区肿瘤患者管理工作尚未形成完整体系，社区肿瘤患者健康需求未得到满足，社区主导的个性化、主动化肿瘤患者管理可为下一步探索方向。

关键词: 肿瘤, 社区卫生服务, 初级卫生保健, 患者管理, 利益相关者

CLC Number:

R 197.1

ZHANG Jingyu,ZHANG Yu,LU Xinxi, et al. The Current Status and Needs of Community-based Cancer Patients Management from the Perspective of Stakeholders[J]. Chinese General Practice, 2026, 29(25): 3664-3669. DOI: 10.12114/j.issn.1007-9572.2024.0608.
张静瑜,张钰,陆新喜等. 利益相关者视角下社区肿瘤患者管理现状与需求研究[J]. 中国全科医学, 2026, 29(25): 3664-3669. DOI: 10.12114/j.issn.1007-9572.2024.0608.

Figures/Tables 1

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The Current Status and Needs of Community-based Cancer Patients Management from the Perspective of Stakeholders

利益相关者视角下社区肿瘤患者管理现状与需求研究

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