Interpretation of International Consensus on Sleep Problems in Pediatric Palliative Care: Paving the Way

doi:10.12114/j.issn.1007-9572.2025.0387

Chinese General Practice

1.Department of Nursing, Shanghai Children's Medical Center, Shanghai Jiao Tong University School of Medicine, Shanghai 200127, China 2.Department of Psychology, the University of Hong Kong, Hong Kong Special Administrative Region 999077, China 3.School of Nursing,Suzhou Medical College of Soochou University, Suzhou 215006, China 4.Shanghai Mental Health Center, Shanghai Jiao Tong University School of Medicine, Shanghai 200127, China 5.Institute of Pediatric Translational Medicine, Shanghai Children's Medical Center, Shanghai Jiao Tong University School of Medicine, Shanghai 200127, China 6.Department of Developmental and Behavioral Pediatrics, Shanghai Children's Medical Center, Shanghai Jiao Tong University School of Medicine, Shanghai 200127, China 7.Shanghai Key Laboratory of Child Brain and Development, Shanghai Children's Medical Center, Shanghai Jiao Tong University School of Medicine, Shanghai 200127, China 8.Shanghai Center for Brain Science and Brain-Inspired Technology, Shanghai 201602, China

Received:2025-09-01 Revised:2025-10-31 Accepted:2025-11-20
Contact: WANG Guanghai, Professor; E-mail: wang-guanghai@163.com

《儿童姑息治疗中睡眠问题的国际共识：铺平道路》解读

1.200127 上海市，上海交通大学医学院附属上海儿童医学中心护理部 2.999077 香港特别行政区，香港大学心理学系 3.215006 苏州市，苏州大学医学院护理学院 4.200127 上海市，上海交通大学医学院附属精神卫生中心 5.200127 上海市，上海交通大学医学院附属上海儿童医学中心儿科转化医学研究所 6.200127 上海市，上海交通大学医学院附属上海儿童医学中心发育行为儿科 7.200127 上海市，上海交通大学医学院附属上海儿童医学中心上海市儿童脑智发育重点实验室 8.201602 上海市，上海脑科学与类脑研究中心

通讯作者: 王广海，研究员；E-mail：wang-guanghai@163.com
基金资助:
科技创新 2030 －脑科学与类脑研究重大项目（2021ZD0204205）；国家自然科学基金面上项目（82071493，82073568）；上海市卫生健康委员会卫生健康学科带头人项目（2022XD056）；上海申康医院发展中心管理研究项目（2024SKMR-29）；上海交通大学护理学院重点学科沪交护（2024）6

Abstract

Abstract: Sleep disturbances, as a prevalent symptom burden in pediatric palliative care (PPC), remain inadequately addressed due to insufficient clinical attention. The current lack of standardized clinical guidelines and protocols urgently demands resolution to bridge the gap in sleep-related symptom management within this field. In response, the International Expert Panel on Pediatric Sleep and Palliative Care developed the inaugural global consensus, "International Consensus on Sleep Disturbances in Pediatric Palliative Care: Paving the Way", published in Sleep Medicine in July 2024. This consensus employed systematic reviews and meta-analyses of existing evidence, focusing on three core themes: definition, assessment/measurement, and therapeutic interventions for sleep disturbances in PPC. Through a two-round Delphi process, 53 consensus recommendations were formulated. However, limitations persist regarding the applicability of these recommendations across heterogeneous pediatric populations and in low- and middle-income countries. This article provides a critical interpretation and suggestion of the consensus, aiming to inform the development of evidence-based, culturally adapted guidelines in China and enhance the standardization of sleep disturbance management within Chinese PPC practice.

Key words: Palliative care, Pediatric palliative care, Sleep problems, Expert consensus, Interpretation

摘要： 在儿童姑息治疗（PPC）领域，睡眠问题作为常见的症状负担之一，却因关注度不足而未得到妥善处理。当前，相关临床指导方针与规范的缺失问题亟待解决，以填补这一领域在睡眠问题管理上的空白。基于此，国际儿童睡眠与姑息治疗专家组制订了全球首个《儿童姑息治疗中睡眠问题的国际共识：铺平道路》，于2024年7月发表在Sleep Medicine杂志上。该共识通过对相关研究进行系统评价和Meta分析，聚焦PPC中睡眠问题的定义、评估/测量、治疗三大主题，经过两轮德尔菲法就三大主题进行总结，汇总形成了53项共识建议。但该共识在覆盖所有异质性患儿群体及在中低收入国家的适用性上仍有所欠缺。本文就形成的全部共识进行解读及建议，以期为未来制订中国本土化的循证指南提供参考，提高中国PPC中睡眠问题管理的规范化水平。

关键词: 姑息疗法, 儿童姑息治疗, 睡眠问题, 专家共识, 解读

CLC Number:

R 47

SHEN Biyu,LU Jiahui,$authoret .al. Interpretation of International Consensus on Sleep Problems in Pediatric Palliative Care: Paving the Way[J]. Chinese General Practice. DOI: 10.12114/j.issn.1007-9572.2025.0387.
沈碧玉,路佳慧,李馨,等. 《儿童姑息治疗中睡眠问题的国际共识：铺平道路》解读[J]. 中国全科医学. DOI: 10.12114/j.issn.1007-9572.2025.0387.

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