中国全科医学 ›› 2024, Vol. 27 ›› Issue (16): 1977-1983.DOI: 10.12114/j.issn.1007-9572.2023.0590

• 论著·认知障碍专题 • 上一篇    下一篇

轻度认知障碍家庭照料者社会支持度及影响因素研究

周路路1, 陆媛2,3,*(), 张怡1, 高欣1, 刘芳1, 成园1, 封玉琴1, 于德华2,3   

  1. 1.200122 上海市浦东新区潍坊社区卫生服务中心
    2.200090 上海市,同济大学附属杨浦医院全科医学科
    3.200090 上海市,同济大学医学院全科医学系
  • 收稿日期:2023-08-25 修回日期:2023-12-15 出版日期:2024-06-05 发布日期:2024-04-08
  • 通讯作者: 陆媛

  • 作者贡献:

    周路路负责论文的撰写、设计、总负责;陆媛负责论文的设计修改,对文章整体负责;张怡、高欣、刘芳、成园、封玉琴负责资料收集、整理;陆媛、于德华负责论文的质量控制。

  • 基金资助:
    上海市卫健委资助项目(20190495); 上海市浦东新区卫生健康委员会优秀青年医学人才培养资助项目(PWRq2022-20); 上海市浦东新区科经委资助项目(PKJ2020-Y94); 上海市"医苑新星"青年医学人才培养资助项目(沪卫人事[2023]62号)

Analysis of Social Support and Related Factors of Family Caregivers of Patients with Mild Cognitive Impairment

ZHOU Lulu1, LU Yuan2,3,*(), ZHANG Yi1, GAO Xin1, LIU Fang1, CHENG Yuan1, FENG Yuqin1, YU Dehua2,3   

  1. 1. Weifang Community Health Service Center, Pudong New Area, Shanghai 200122, China
    2. Department of General Practice, Yangpu Hospital, Tongji University, Shanghai 200090, China
    3. Academic Department of General Practice, Tongji University School of Medicine, Shanghai 200090, China
  • Received:2023-08-25 Revised:2023-12-15 Published:2024-06-05 Online:2024-04-08
  • Contact: LU Yuan

摘要: 背景 轻度认知障碍(MCI)是一种与年龄相关的慢性非传染性疾病,其家庭照料者面临一定的照料负担。目前较多研究聚焦于中重度认知障碍患者的照料负担及社会支持,对MCI家庭照料者的社会支持度及影响因素研究较少。 目的 探索MCI家庭照料者社会支持度水平及其影响因素,为MCI家庭照料者提供社会支持。 方法 选取2020年4月—2021年8月在上海市浦东新区潍坊社区卫生服务中心初步诊断为MCI患者的家庭照料者102名为研究对象,成立认知障碍管理小组,对MCI家庭照料者进行一般情况调查以及社会支持度量表(SSRS)、照料者积极感受度量表(PAC)、Zarit照料者负担问卷(ZBI)评估,分析MCI家庭照料者社会支持度的影响因素。 结果 MCI家庭照料者的社会支持度平均得分为(31.26±6.87)分,其中客观支持平均得分(7.02±2.10)分,主观支持平均得分(17.93±4.62)分,支持的利用度平均得分(6.31±1.96)分。不同婚姻状况、家庭月收入状况、对MCI了解程度MCI家庭照料者SSRS得分比较,差异有统计学意义(P<0.05)。多元线性回归分析结果显示,婚姻状况、与患者的关系、是否同住、PAC总分为MCI家庭照料者客观支持度的影响因素(P<0.05),与患者的关系、家庭月收入、有无宗教信仰、PAC总分为MCI家庭照料者主观支持度的影响因素(P<0.05);二元Logistic回归分析结果显示,与患者的关系、家庭月收入、对MCI的认知度、积极感受总得分为MCI家庭照料者社会支持度的影响因素(P<0.05)。 结论 MCI家庭照料者总的社会支持度较低,患者与照料者关系远、家庭月收入低、对MCI的认知度低、照料者积极感受度低是MCI家庭照料者社会支持的独立影响因素。家庭、社会及社区层面应从各方面给予照料者支持,从而提高照料者的幸福感,也有利于MCI的社区协同管理。

关键词: 认知障碍, 轻度认知障碍, 照料者, 社会支持, 积极感受, 照料负担, 影响因素分析

Abstract:

Background

Mild cognitive impairment (MCI) is an age-related chronic noncommunicable disease facing a certain caregiving burden. At present, most studies focus on the caregiving burden and social support of caregivers of patients with moderate-to-severe cognitive impairment, but there are few studies on the social support and related factors of caregivers of MCI patients.

Objective

To explore the social support and related factors of caregivers of MCI patients, and provide evidence for feasible social support for caregivers of MCI patients.

Methods

A total of 102 family caregivers of patients initially diagnosed as MCI in Weifang Community Health Service Center, Pudong New Area, Shanghai from April 2020 to August 2021 were recruited. A cognitive impairment management group was established to investigate basic information, social support rate score (SSRS), positive aspects of caregiver (PAC) score and Zarit Caregiver Burden Questionnaire (ZBI) score of the caregivers of patients with MCI. The related factors of social support for the participants were analyzed.

Results

The average score of social support of caregivers of MCI patients was (31.26±6.87), including the average score of objective support as (7.02±2.10), subjective support as (17.93±4.62) and support utilization as (6.31±1.96). Comparison of SSRS scores of caregivers with different marital status, monthly household income status, and understanding of MCI showed statistically significant differences (P<0.05). Multiple linear regression analysis showed that marital status, relationship with patients, living together, and total PAC scores were the related factors of caregivers' objective support (P<0.05), while the relationship with patients, monthly family income, religious belief, and total PAC scores were factors influencing caregivers' subjective support (P<0.05). Binary Logistic regression analysis indicated that the relationship with patients and monthly household income, awareness of MCI and total score of positive feelings were the influencing factors of social support of MCI caregivers (P<0.05) .

Conclusion

The total social support of family caregivers of MCI patients is low, and the distant relationship between patients and caregivers, low monthly household income, low awareness of MCI, and low positive feelings of caregivers are independent influencing factors on the social support of MCI caregivers. Caregivers should be supported in all aspects at the family, social and community levels, thus improving their happiness and also facilitating collaborative community management of MCI.

Key words: Cognition disorders, Mild cognitive impairment, Caregivers, Social support, Positive feelings, Care burden, Root cause analysis

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