Chinese General Practice ›› 2026, Vol. 29 ›› Issue (25): 3577-3583.DOI: 10.12114/j.issn.1007-9572.2025.0546

Special Issue: 社区卫生服务最新研究合辑

• Clinical Focus·Post-diagnostic Management for Dementia • Previous Articles     Next Articles

The Development of a Community-based Post-diagnostic Co-management Program for People with Dementia and Their Caregivers in Beijing

  

  1. 1. School of General Practice and Continuing Education, Capital Medical University, Beijing 100069, China
    2. Department of Neurology, Beijing Chaoyang Hospital of Capital Medical University, Beijing 100020, China
  • Received:2026-04-03 Revised:2026-06-28 Published:2026-09-05 Online:2026-08-11
  • Contact: DU Juan, ZHANG Juan

北京市失智症患者及其照顾者诊断后社区共同管理方案构建研究

  

  1. 1.100069 北京市,首都医科大学全科医学与继续教育学院
    2.100020 北京市,首都医科大学附属北京朝阳医院神经内科
  • 通讯作者: 杜娟, 张娟
  • 作者简介:

    作者贡献:

    李海瑾负责研究方案设计、研究过程实施、数据收集与整理、统计学分析和论文起草;朱宸立、李卉协助进行研究方案设计、研究过程实施和论文修订;高璟璇、常冰洁协助进行数据收集与整理;杜娟负责提出研究思路,获得项目支持,文章的质量控制与审查,对文章整体负责;张娟负责研究的构思与设计,研究过程实施的监督管理,对文章整体负责。

  • 基金资助:
    首都卫生管理与政策研究基地开放性课题(2024JD07)

Abstract:

Background

People with dementia typically require ongoing care and comprehensive management following diagnosis. However, current long-term management strategies exhibit significant shortcomings, and the importance of family caregivers in their long-term care is often overlooked.

Objective

This study aims to develop a post-diagnostic management program tailored to the community context in Beijing, encompassing both patients with dementia and their family caregivers.

Methods

The research team constructed a draft of the management program using literature analysis and stakeholder interviews, and conducted an expert meeting in June 2025 to validate the draft. A total of 10 experts were invited to attend the meeting, and their basic information and authority levels were collected via the meeting invitation letter. Within three days after the meeting, the modified management program was sent back to the experts for verification, and they were asked to rate the importance of each item.

Results

The expert authority coefficient was 0.86. The mean importance scores for all items ranged from 4.3 to 5.0, with coefficients of variation ranging from 0 to 0.22. The Kendall's coefficient of concordance for the importance scores of all items were 0.140 (P<0.05). The final program comprises five domains: follow-up assessment, medication management, non-pharmacological interventions, management of coexisting health problems, and caregiver support, as well as the corresponding division of responsibilities, and the corresponding management process has been formulated.

Conclusion

The program is scientifically sound, reliable, comprehensive, and considers practical implementation within primary care settings. It provides a feasible and evidence-informed framework for care of people with dementia and their caregivers in Beijing.

Key words: Dementia, Post-diagnostic management, Community health service, Semi-structured interview, Expert meeting law, Beijing

摘要:

背景

失智症患者诊断后常需要长期的照护和管理,然而目前失智症患者的长期管理存在明显不足,家庭照顾者在其长期照护中的重要作用常被忽视。

目的

构建适用于北京市社区场景的、涵盖失智症患者及其照顾者的诊断后共同管理方案。

方法

研究小组基于文献分析和利益相关者访谈构建管理方案初稿,并于2025年6月采用专家会议法对管理方案初稿进行论证。共邀请10名专家出席会议,基于会议邀请函收集专家的基本情况和权威程度信息。于会议结束3 d内,向专家再次求证修改后的管理方案,并请其对各项目进行重要性评分。

结果

专家权威系数为0.86,各项目的重要性评分均数为4.3~5.0分,变异系数为0~0.22,所有项目重要性得分的肯德尔协调系数为0.140(P<0.05)。最终构建的管理方案涵盖随访评估、药物管理、非药物管理、共存健康问题管理、照顾者管理五部分内容及相应的职责分工,并制订了相应管理方式。

结论

本研究构建的管理方案科学可靠、内容全面,且充分考虑了社区实施的可行性,为北京市社区开展失智症患者及照顾者的共同管理提供了实践依据。

关键词: 失智症, 诊断后管理, 社区卫生服务, 半结构化访谈, 专家会议法, 北京