关键词: 卒中, 社区, 照顾者, 社会支持, 质性研究

Abstract: Background　As the second leading cause of death in the world，stroke kills 5.5 million people in 2016.It causes heavy burdens to patients，their families and the society.Social support can reduce the anxiety，depression and other psychological pain of patients and their caregivers during rehabilitation，but the level of social support obtained by them is low.At present，there are so many quantitative studies about the social support.However，it is difficult to thoroughly know the experience of patients and caregivers.Objective　To investigate the perceived social support in stroke survivors and their caregivers during the rehabilitation in the community.Methods　 From September to December 2018，by using both purposive and snowball sampling，9 stroke survivor-caregiver dyads were selected from Linshanzhai Community，Zhengzhou City.Semi- structured face-to-face interviews were conducted with them and the results were analyzed with Colaizzi's phenomenological method.Results　 The interview results were classified into three themes:（1） Sources of perceived social support.From the perspective of stoke survivors，their social support came from the major family caregiver and other family members，friends and community healthcare workers.From the perspective of caregivers，their social support came from other family members，friends and neighbors.（2） Types of perceived social support.The types of social support obtained by stoke survivors included information，emotional and tool supports.The caregivers obtained emotional and information supports，and provided emotional and tool supports for stoke survivors.（3） Barriers to obtaining social support.From the perspective of stoke survivors，the barriers consisted of three internal factors（cognitive bias in seeking support，uncomprehended needs and depression），and two external factors（insufficient sources for support and lack of ways to access to support）.From the perspective of caregivers，the barriers consisted of three internal factors（weak awareness of seeking help，insufficient time and strong character），and two external factors（insufficient sources for support and lack of ways to access to support）.Conclusion　 To better promote the rehabilitation of the stroke survivors，healthcare providers in the community should provide continuous，effective and dynamic family-focused social support for stroke survivors and their family caregivers during the rehabilitation based on the evaluation results of their education level，clear needs and perceptions.

Key words: Stroke, Community, Caregivers, Social support, Qualitative research