Chinese General Practice ›› 2020, Vol. 23 ›› Issue (24): 2991-2999.DOI: 10.12114/j.issn.1007-9572.2020.00.393
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2020-08-20
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2020-08-20
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[1]American Psychiatric Association.Diagnostic and statistical manual of mental disorders[M].5th ed.Virginia:American Psychiatric Publishing,2013:55-59. [2]新华网.中国“自闭症”患者超千万 发病率逐年攀升[EB/OL].(2015-04-02)[2020-02-04].http://www.xinhuanet.com//politics/2015-04/02/c_127651157.htm. [3]MAENNER M J,SHAW K A,BAIO J,et al.Prevalence of autism spectrum disorder among children aged 8 years——Autism and Developmental Disabilities Monitoring Network,11 Sites,United States,2016[J].MMWR Surveill Summ,2020,69(4):1-12.DOI:10.15585/mmwr.ss6904a1. [4]刘振寰,谢巧玲,林青梅,等.自闭症儿童生存质量的研究[C]//中华中医药学会儿科分会.中华中医药学会儿科分会第三十次学术大会论文汇编.中华中医药学会儿科分会:中华中医药学会,2013:342. [5]BROBST J B,CLOPTON J R,HENDRICK S S.Parenting children with autism spectrum disorders:the couple's relationship[J].Focus on Autism and Other Developmental Disabilities,2009,24(1):38-49.DOI:10.1177/1088357608323699. [6]HOFFMAN C D,SWEENEY D P,HODGE D,et al.Parenting stress and closeness:mothers of typically developing children and mothers of children with autism[J].Focus on Autism and Other Developmental Disabilities,2009,24(3):178-187.DOI:10.1177/1088357609338715. [7]LEE G K,LOPATA C,VOLKER M A,et al.Health-related quality of life of parents of children with high-functioning autism spectrum disorders[J].Focus on Autism and Other Developmental Disabilities,2015,24(4):227-239.DOI:10.1177/1088357609347371. [8]CHAN J B,SIGAFOOS J.Does respite care reduce parental stress in families with developmentally disabled children?[J].Child and Youth Care Forum,2001,30(5):253-263.DOI:10.1023/a:1014467226528. [9]涂骁玲.居家式喘息服务的利用分析及对策研究——以杭州市西湖区为例[D].杭州:杭州师范大学,2015. [10]GRIFFITH D.Respite care[J].BMJ,1993,306(6871):160.DOI:10.1136/bmj.306.6871.160. [11]Respite Care Association of Wisconsin.Respite Care[EB/OL].(2018-12-17)[2019-02-18].https://respitecarewi.org/live/about-us/faq/. [12]Autism and PDD Social Network.Respite Care[EB/OL].(2019-05-29)[2019-02-18].http://www.autism-pdd.net/respite-care. [13]WHITMORE K E.The concept of respite care[J].Nurs Forum,2017,52(3):180-187.DOI:10.1111/nuf.12179. [14]WHITMORE K E,SNETHEN J.Respite care services for children with special healthcare needs:Parental perceptions[J].J Spec Pediatr Nurs,2018(6):e12217.DOI:10.1111/jspn.12217. [15]ROBINSON-LANE S G.Accessing respite care for persons with a disability[J].Arch Phys Med Rehabil,2017,98(10):2103-2105.DOI:10.1016/j.apmr.2017.05.010. [16]骆美辰,岑莉,陈帅男,等.在自闭症康复机构中建立大学生志愿服务长效机制研究[J].卫生职业教育,2017,35(14):154-156. [17]MURPHY C M,VERDEN C E.Supporting families of individuals with autism spectrum disorders:developing a university-based respite care program[J].Journal of Positive Behavior Interventions,2013,15(1):16-25.DOI:10.1177/1098300712436845. [18]BREITHAUPT A G,THOMAS K C,WONG C S,et al.Finding common ground:exploring undergraduate student volunteering as a support for parents of children with autism[J].Focus on Autism and Other Developmental Disabilities,2015,32. [19]MELISSA W,MONIKA W,LAWRENCE R.Respite Care[EB/OL].(2019-01-15)[2019-02-12].https://www.helpguide.org/articles/caregiving/respite-care.htm. [20]CORKIN D A,PRICE J,GILLESPIE E.Respite care for children,young people and families——are their needs addressed?[J].Int J Palliat Nurs,2006,12(9):422-427.DOI:10.12968/ijpn.2006.12.9.21870. [21]WILKIE B,BARR O.The experiences of parents of children with an intellectual disability who use respite care services[J].Learning Disability Practice,2008,11(5):30. [22]MCCONKEY R,KELLY F,CRAIG S.Access to respite breaks for families who have a relative with intellectual disabilities:a national survey[J].J Adv Nurs,2011,67(6):1349-1357.DOI:10.1111/j.1365-2648.2010.05586.x. [23]BIGHAM A,CUNNINGHAM J,JOHNSTON K.Respite care for families of children with disabilities:a university/faith community model[J].J Christ Nurs,2017,34(1):52-58.DOI:10.1097/CNJ.0000000000000337. [24]PREECE D.Respite care for families with children with autism spectrum disorders:how services in Northamptonshire UK are working to meet the challenge[J].2013. [25]白文辉,丁金锋,唐四元.居家喘息服务研究进展[J].解放军护理杂志,2017,34(5):58-61.DOI:10.3969/j.issn.1008-9993.2017.05.015. [26]TRUESDALE-KENNEDY M,MCCONKEY R,FERGUSON P,et al.An evaluation of a family-centred support service for children with a significant learning disability[J].Child Care in Practice,2006,12(4):377-390.DOI:10.1080/13575270600863291. [27]MCGILL P,PAPACHRISTOFOROU E,COOPER V.Support for family carers of children and young people with developmental disabilities and challenging behaviour[J].Child Care Health Dev,2006,32(2):159-165.DOI:10.1111/j.1365-2214.2006.00600.x. [28]PREECE D.Short breaks services for children with autistic spectrum disorders:factors associated with service use and non-use[J].J Autism Dev Disord,2007,37(2):374-385.DOI:10.1007/s10803-006-0174-2 [29]CAROL R,KIRSTEN S.Patterns of provision in respite care and the children act[J].The British Journal of Social Work,1993,23(1):45-63.DOI:10.1093/oxfordjournals.bjsw.a055940. [30]GRANT G,MCGRATH M.Need for respite-care services for caregivers of persons with mental retardation[J].Am J Ment Retard,1990,94(6):638-648. [31]MARC D L,MACDONALD L.Respite care——who uses it?[J].Ment Retard,1988,26(2):93-96. [32]FACTOR D C,PERRY A,FREEMAN N.Stress,social support,and respite care use in families with autistic children[J].J Autism Dev Disord,1990,20(1):139-146.DOI:10.1007/bf02206863. [33]HOARE P,HARRIS M,JACKSON P,et al.A community survey of children with severe intellectual disability and their families:psychological adjustment,carer distress and the effect of respite care[J].J Intellect Disabil Res,1998,42(Pt 3):218-227.DOI:10.1046/j.1365-2788.1998.00134.x. [34]MANSELL I,WILSON C.Current perceptions of respite care:experiences of family and informal carers of people with a learning disability[J].J Intellect Disabil,2009,13(4):255-267.DOI:10.1177/1744629509356725. [35]HARPER A,TAYLOR DYCHES T,HARPER J,et al.Respite care,marital quality,and stress in parents of children with autism spectrum disorders[J].J Autism Dev Disord,2013,43(11):2604-2616.DOI:10.1007/s10803-013-1812-0. [36]MCGROTHER C W,BHAUMIK S,THORP C F,et al.Prevalence,morbidity and service need among South Asian and white adults with intellectual disability in Leicestershire,UK[J].J Intellect Disabil Res,2002,46(Pt 4):299-309.DOI:10.1046/j.1365-2788.2002.00391.x. [37]SOUTHBY K.Barriers to non-residential respite care for adults with moderate to complex needs:a UK perspective[J].J Intellect Disabil,2016,21(4):366-386.DOI:10.1177/1744629516658577. [38]DURà-VILà G,HODES M.Ethnic variation in service utilisation among children with intellectual disability[J].J Intellect Disabil Res,2009,53(11):939-948.DOI:10.1111/j.1365-2788.2009.01214.x. [39]CARLIN C J.Family-based short breaks(respite)for disabled children:results from the Fourth National Survey[J].British Journal of Social Work,2008,38(6):1060-1075.DOI:10.1093/bjsw/bcl393. [40]FRIEDRICH W N,GREENBERG M T,CRNIC K A.A short-form of the questionnaire on resources and stress[J].Am J Ment Defic,1983,88(1):41-48. [41]DYCHES T T,CHRISTENSEN R,HARPER J M,et al.Respite care for single mothers of children with autism spectrum disorders[J].J Autism Dev Disord,2016,46(3):812-824.DOI:10.1007/s10803-015-2618-z. [42]LOYD B H,ABIDIN R R.Revision of the parenting stress index[J].J Pediatr Psychol,1985,10(2):169-177.DOI:10.1093/jpepsy/10.2.169. [43]OGSTON-NOBILE P L.The division of family work among fathers and mothers of children with an autism spectrum disorder:implications for parents and family functioning[D].Richmond:Virginia Commonwealth University,2014. [44]BLANK D.Evaluation of a therapeutic camp:exploration of personality variables predictive of outcome[J].Oncology Reports,2010,26(4):965-970.DOI:10.3892/or.2011.1374. [45]SPRUIN E,ABBOTT N,HOLT N.Examining the experiences of a short break scheme amongst adolescents with disabilities(service users)and their parents[J].International Journal of Disability Development & Education,2018,65(2):148-162.DOI:10.1080/1034912x.2017.1348599. [46]SHAMASH E R.Predictors of stress among parents of preschool aged children with autism spectrum disorders[D].New York:Columbia University,2011. [47]COWEN P S,REED D A.Effects of respite care for children with developmental disabilities:evaluation of an intervention for at risk families[J].Public Health Nurs,2010,19(4):272-283.DOI:10.1046/j.1525-1446.2002.19407.x. [48]WELCH V,HATTON C,EMERSON E,et al.Do short break and respite services for families with a disabled child in England make a difference to siblings?A qualitative analysis of sibling and parent responses[J].Children & Youth Services Review,2012,34(2):451-459.DOI:10.1016/j.childyouth.2011.12.002. [49]EATON N.'I don't know how we coped before':a study of respite care for children in the home and hospice[J].J Clin Nurs,2008,17(23):3196-3204.DOI:10.1111/j.1365-2702.2008.02630.x. [50]厦门市海沧区人民政府.海沧区残联设立全市首家“民办公助”区特殊儿童康复培训中心[EB/OL].(2017-05-18)[2020-02-09].http://www.haicang.gov.cn/xx/ywdt/hcyw/jrhc/shsh/jzfl_40102/201801/t20180119_470372.htm. [51]郑州市残联.郑州市惠济区残联“善行惠济春风行动”孤独症家长喘息服务计划启动仪式[EB/OL].(2019-07-12)[2020-02-09].https://www.henancjr.org.cn/articles.aspx?mid=327&id=22496. [52]江苏文明网.为特殊家庭提供喘息服务[EB/OL].(2018-08-22)[2020-02-09].http://wm.jschina.com.cn/18852/zjh3/others/201809/t20180907_5679226.shtml. [53]惠州日报.惠州计划向222名自闭症学生提供资助,每人500元[EB/OL].(2018-04-01)[2020-02-09].http://static.nfapp.southcn.com/content/201804/01/c1062785.html. [54]凤凰网.青岛提供“喘息服务” 帮自闭症儿童家长“喘口气”[EB/OL].(2019-04-01)[2020-02-09].http://qd.ifeng.com/a/20190401/7321621_0.shtml. [55]MOURA O,SIM?ES M R,PEREIRA M.WISC-Ⅲ cognitive profiles in children with developmental dyslexia:specific cognitive disability and diagnostic utility[J].Dyslexia,2014,20(1):19-37.DOI:10.1002/dys.1468. [56]邹卓,刘芸,黄浩宇,等.儿童孤独症谱系障碍流行现状和家庭干预的研究及策略[J].中国全科医学,2020,23(8):900-907.DOI:10.12114/j.issn.1007-9572.2019.00.717. ZOU Z,LIU Y,HUANG H Y.Research progress and strategies on family intervention of children with autism spectrum disorder[J].Chinese General Practice,2020,23(8):900-907.DOI:10.12114/j.issn.1007-9572.2019.00.717. [57]林云强.自闭症儿童家庭干预方法的研究[J].当代青年研究,2013(5):107-112.DOI:10.3969/j.issn.1006-1789.2013.05.018. LIN Y Q.Investigations on the family intervention methods of autistic children in rehabilitation agencies[J].Contemporary Young Research,2013(5):107-112.DOI:10.3969/j.issn.1006-1789.2013.05.018. [58]王丹洋,李静,姜宜君,等.国内外自闭症病人照顾服务的资源分配与问题分析[J].护理研究,2015(23):2817-2820.DOI:10.3969/j.issn.1009-6493.2015.23.001. WANG D Y,LI J,JIANG J Y,et al.Analysis of resource allocation and problem of care services for patients with autism at home and in abroad[J].Chinese Nursing Research,2015(23):2817-2820.DOI:10.3969/j.issn.1009-6493.2015.23.001. [59]中华人民共和国民政部.民政部对“进一步完善我国残疾儿童早期干预及系统支持相关政策、法规的建议”的答复[EB/OL]. (2019-12-03)[2020-02-09].http://www.mca.gov.cn/article/gk/jytabljggk/rddbjy/201912/20191200021862.shtml. [60]Autism Speaks.Respite Care[EB/OL].(2020-01-16)[2020-02-09].https://www.autismspeaks.org/respite-care-0. |
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