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1.

Social Support and Its Associated Factors among Family Caregivers of Persons with Severe Mental Illness

WANG Ruoxi, SONG Suyi, ZHOU Yongjie, LIU Yifeng
Chinese General Practice    2022, 25 (04): 480-488.   DOI: 10.12114/j.issn.1007-9572.2021.00.347
Abstract1073)   HTML51)    PDF(pc) (946KB)(2733)    Save
Background

Understanding the characteristics of social support of family caregivers of persons with severe mental illness, and identifying the associated factors are the preconditions of developing evidence-based intervention strategies to improve social support for this vulnerable group. Among the limited studies concerned family caregivers of patients with severe mental illness, the majority focused on their own individual factors, leaving patient- and family-level associated factors largely under-investigated.

Objective

To explore the social support and associated factors among family caregivers of persons with severe mental illness, providing a theoretical basis for the development of evidence-based strategies to enhance the level of social support in this group.

Methods

A cross-sectional design was used. Multistage sampling was used to select three tertiary grade A mental health organizations from three cities located in eastern, central, and western China, respectively (one was extracted from each city) , then from which, family caregivers of persons with severe mental illness who received outpatient services between August 2018 and December 2019 were selected, and their family caregivers (n=1 001) were recruited as participants. A self-administered survey was conducted in the family caregivers using a questionnaire〔consisting of two parts: demographics and the Social Support Rating Scale (SSRS) 〕compiled by our research team to collect their individual and family information and social support status, as well as patients' (the care receivers') information. Multiple linear regression was employed to identify associated factors for the total score and domain scores of SSRS.

Results

The mean total score of SSRS for the family caregivers was (34.4±9.1) . And the mean score for its three domains, subjective social support, objective social support, and social support utilization was (20.3±6.2) , (7.5±2.8) , (6.6±2.3) , respectively. The type of occupation of the caregivers, and the type of mental diseases and stability of symptoms of patients cared by them, as well as mean household monthly income per person were associated with the total score of SSRS for the family caregivers (P<0.05) . Furthermore, marital status and religious belief of caregivers, as well as their relationship with the patients cared by them also affected the total score of SSRS of the family caregivers (P<0.05) . As for the scores of domains of SSRS, they were found to be influenced by the type of occupation of the caregivers, the type of mental diseases and stability of symptoms of patients cared by them, and mean household monthly income per person (P<0.05) . Besides that, gender, marital status, living area (rural or urban) , and religious belief of caregivers, their relationship with patients cared by them, and the amount of family subsidies also affected the score of subjective social support of family caregivers (P<0.05) ; the amount of family subsidies also affected the objective social support score of family caregivers (P<0.05) ; gender and living area (rural or urban) of caregivers, and the amount of family subsidies also affected the score of social support utilization of family caregivers (P<0.05) .

Conclusion

Family caregivers of patients with severe mental illness possessed a low level of social support, had limited access to social support, perceived insufficient support, and used social support rather insufficiently. There were differences in factors associated with their overall social support and domain-specific social support. More attention should be paid to family caregivers who are single, unemployed, have low household monthly income per person, care for patients with schizophrenia or unstable mental symptoms, and provide them with support in accordance with their needs, by which their care burden can be alleviated, and their physical and mental health will be improved eventually.

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2. Advances in the Development of Assessment Tools of Adverse Childhood Experiences
WANG Lu,QU Yanhua,ZOU Haiou*
Chinese General Practice    2020, 23 (24): 3000-3005.   DOI: 10.12114/j.issn.1007-9572.2020.00.305
Abstract1010)      PDF(pc) (1411KB)(3514)    Save
The World Health Organization survey shows that more than one third of the global population has had bad childhood experiences.The Centers for Disease Control and Prevention also pointed out in the 2019 report that at least one seventh of the children in the past year have suffered abuse and / or neglect.As a global public health problem,adverse childhood experiences not only damage individual physical and mental health in the short term,but also have a lifelong impact.In recent years,domestic and foreign scholars have explored adverse childhood experiences and formed relevant assessment tools.This paper summarized the widely used assessment tools with good reliability and validity,aiming to provide a comprehensive reference for the evaluation of adverse childhood experiences,and offer insights into related research and interventions in China.
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3.

Experiences of Family Caregivers of Chinese Cancer Patientsa Qualitative Meta-synthesis

HE Longtao, WU Han
Chinese General Practice    2022, 25 (04): 416-423.   DOI: 10.12114/j.issn.1007-9572.2021.00.258
Abstract920)      PDF(pc) (1038KB)(1576)    Save
Background

Care needs of Chinese cancer patients have increased significantly, due to massive population ageing and an increasing cancer incidence rate. Family caregiving, being the most important component in meeting those care needs, comes with many kinds of care burdens for caregivers. Thus, it is vital to systematically examine caregiving experiences of family caregivers for cancer patients.

Objective

To systematically synthesize the care experiences of family caregivers for Chinese cancer patients.

Methods

All qualitative studies on the caregiving experiences of family caregivers for Chinese cancer patients were systematically retrieved from Web of Science, PubMed, EmBase, Medline, Cochrane Library, grey literature in the health sciences, CNKI, and Wanfang Data from inception to May 23, 2021 between January and May 2021. The 2016 JBI Critical Appraisal Checklist for Qualitative Research was used for quality evaluation. Meta-synthesis of the included studies was performed.

Results

Nineteen studies (6 in Chinese and 13 in English) were finally included, involving 295 family caregivers in total. Nine were rated A with very low risk of bias, and 10 were rated B with relatively low risk of bias. Three overarching themes containing 15 subthemes emerged: patient-centered care needs, care burden and care gains.

Conclusion

This qualitative meta-synthesis provides a deep and comprehensive analysis of the care experiences of family caregivers of Chinese cancer patients, which may help improve the construction of medical system to meet the needs of patient-centered care, strengthen the positive factors affecting the care experience at the micro, meso and macro levels, and carry out intervention measures such as death and life education to reduce the negative impact of cultural factors on the care experience.

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4.

Caregiving Experiences of Family Caregivers for Children with Tumorsa Qualitative Systematic Review

HE Longtao, LI Menghua, WU Han
Chinese General Practice    2022, 25 (10): 1275-1282.   DOI: 10.12114/j.issn.1007-9572.2021.00.308
Abstract752)   HTML19)    PDF(pc) (1078KB)(1119)    Save
Background

As the most direct caregivers, family caregivers play a crucial role in caring children with cancer. Qualitative studies on their emotions and experiences have reported that they face great challenges and pressures during caring children with cance.

Objective

To perform an integrative synthesis of caregiving experiences of family caregivers of children with cancer, providing evidence derived from practice for improving the caring for such children, and their family caregivers' physical and mental health.

Methods

Qualitative studies regarding caregiving experiences of family caregivers for children with cancer were retrieved from Web of Science, PubMed, EmBase, Medline, CNKI, and Wanfang Data from inception to June 1, 2021. Literature screening, and data extraction were performed by two researchers, separately. Methodological quality was assessed using JBI Critical Appraisal Checklist for Systematic Reviews and Research Syntheses. And the results were synthesized using an integrative review approach.

Results

Twelve studies were finaly enrolled. Thirty-eight complete evidence of 11 types arose from the synthesis and were summarized into two themes: (1) care challenges and burdens; (2) care resources. Each primary topic encompasses multiple sub-topics.

Conclusion

We found that family caregivers face a variety of burdens and challenges, and they attempt to actively solve them using their own strengths, supports from their own personal networks, other people, external sources (non-governmental, public and supportive policy resources) , culture and belief, as well as knowledge about hospice care. To relieve their care burden, and improve the quality of life of these children, it is suggested that medical workers should provide these caregivers with targeted guidance and supports with the features of the specific treatment phase of the children, and their caregivers' caregiving experiences and culture taken into consideration.

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5. Chain Mediating Effect of Frailty and Sleep Quality on the Relationship between Family Support and Fall Risk of Rural Elderly People 
ZHENG Fang,CHEN Changxiang,CUI Zhaoyi
Chinese General Practice    2021, 24 (9): 1071-1075.   DOI: 10.12114/j.issn.1007-9572.2021.00.051
Abstract686)      PDF(pc) (1106KB)(932)    Save
Background The risk of falls increases with age-related gradual decline in physical functions,sleep quality and physical responsiveness as well as increase in frailty,which has become a focus of various scholars.Objective To explore the chain mediating effect of frailty and sleep quality on the relationship between family support and fall risk of rural elderly people.Methods From August 2019 to April 2020,the rural elderly in 15 villages of Xiaoji Town,Fengnan District,Tangshan City received a household survey with a questionnaire consisting of parts of self-designed demographics,PSS-Fa,Fried frailty index,PSQI and modified FROP-Com.The questionnaires were handed in immediately after being completed by older people with functional independence or by investigators based on the results of interviews with older people without abilities to complete independently.Pearson correlation analysis and mediation model were used to explore the chain mediating effect of frailty and sleep quality on the relationship between family support and fall risk.Results The survey obtained a response rate of 96.6%(1 498/1 550).The average scores of PSS-Fa,Fried frailty index,PSQI and modified FROP-Com were (9.0±2.0) (2.2±1.5) (7.1±4.0) (6.5±5.8),respectively.The average scores of PSS-Fa,Fried frailty index,or modified FROP-Com differed significantly by sex,age and education level as well as marital status (P<0.05).The average scores of PSQI differed significantly by sex,age and education level(P<0.05).The score of PSS-Fa was negatively correlated with that of Fried frailty index,PSQI or modified FROP-Com (r=-0.197,-0.113,-0.266,P<0.05).The scores of Fried frailty index was positively correlated with that of PSQI or modified FROP-Com (r=0.284,0.577,P<0.05).PSQI score was positively correlated with the score of modified FROP-Com (r=0.319,P<0.05).Path analysis showed that family support had a negative impact on frailty (β=0.17,P<0.001) and sleep quality (β=0.11,P<0.001).Good sleep quality had a positive impact on frailty(β=0.27,P<0.001) and risk of falls(β=0.53,P<0.001).Frailty was associated with increased risk of falls (β=0.53,P<0.001).Bias-corrected bootstrap revealed that the estimated effect size of frailty in the path of "family support → frailty→ fall risk" was -0.257〔95%CI(-0.340,-0.176)〕,indicating that frailty played a partial medicating role between family support and fall risk.The estimated effect size of sleep quality was -0.055〔95%CI(-0.089,-0.029)〕in the path of "family support → sleep quality → fall risk",indicating that sleep quality played a partial medicating role between family support and fall risk.The estimated effect size of “sleep quality →frailty” was -0.046〔95%CI(-0.070,-0.020)〕in the path of "family support →sleep quality →frailty→ fall risk",indicating that sleep quality and frailty played a chain mediating role in the relationship between family support and fall risk.Conclusion Frailty and sleep quality may have chain mediating effect on the relationship between family support and fall risk in rural elderly people.Therefore,slowing down the process of frailty and improving sleep quality may be conducive to reducing the risk of falls and improving the quality of life.
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6. Perceived Social Support in Stroke Survivors and Their Caregivers during Rehabilitation in the Community:a Qualitative Study 
CHEN Suyan,MEI Yongxia,ZHANG Zhenxiang
Chinese General Practice    2020, 23 (35): 4503-4507.   DOI: 10.12114/j.issn.1007-9572.2020.00.106
Abstract683)      PDF(pc) (1040KB)(1275)    Save
Background As the second leading cause of death in the world,stroke kills 5.5 million people in 2016.It causes heavy burdens to patients,their families and the society.Social support can reduce the anxiety,depression and other psychological pain of patients and their caregivers during rehabilitation,but the level of social support obtained by them is low.At present,there are so many quantitative studies about the social support.However,it is difficult to thoroughly know the experience of patients and caregivers.Objective To investigate the perceived social support in stroke survivors and their caregivers during the rehabilitation in the community.Methods  From September to December 2018,by using both purposive and snowball sampling,9 stroke survivor-caregiver dyads were selected from Linshanzhai Community,Zhengzhou City.Semi- structured face-to-face interviews were conducted with them and the results were analyzed with Colaizzi's phenomenological method.Results  The interview results were classified into three themes:(1) Sources of perceived social support.From the perspective of stoke survivors,their social support came from the major family caregiver and other family members,friends and community healthcare workers.From the perspective of caregivers,their social support came from other family members,friends and neighbors.(2) Types of perceived social support.The types of social support obtained by stoke survivors included information,emotional and tool supports.The caregivers obtained emotional and information supports,and provided emotional and tool supports for stoke survivors.(3) Barriers to obtaining social support.From the perspective of stoke survivors,the barriers consisted of three internal factors(cognitive bias in seeking support,uncomprehended needs and depression),and two external factors(insufficient sources for support and lack of ways to access to support).From the perspective of caregivers,the barriers consisted of three internal factors(weak awareness of seeking help,insufficient time and strong character),and two external factors(insufficient sources for support and lack of ways to access to support).Conclusion  To better promote the rehabilitation of the stroke survivors,healthcare providers in the community should provide continuous,effective and dynamic family-focused social support for stroke survivors and their family caregivers during the rehabilitation based on the evaluation results of their education level,clear needs and perceptions.
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7. New Advances in Three-level Prevention of Elder Abuse 
DU Yage,ZHANG Liping,LIU Jie,DOU Haoying,ZHANG Chunmei
Chinese General Practice    2021, 24 (9): 1131-1135.   DOI: 10.12114/j.issn.1007-9572.2021.00.066
Abstract677)      PDF(pc) (1112KB)(1226)    Save
Elder abuse is recognized as a global public health and social issue,which can destroy the health of the elderly by declining their physical,psychological and social functions,even result in death. Timely and effective intervention can reduce the prevalence of elder abuse and improve the quality of life of the elderly. We elaborated the three-level prevention and relevant interventions for elder abuse at home and abroad,and put forward recommendations for improving domestic elder abuse,such as further improving the health legislation for the elderly,carrying out extensive education of elder abuse in the community and society,strengthening the training for professionals such as physicians,nurses,lawyers and social workers to enhance their ability to identify and intervene elder abuse,delivering diversified secondary preventive measures and properly relocating the abused elderly.
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8.  Advances in Current Situation of Elder Abuse and Its Influencing Factors in Rural Areas of China 
DU Yage,PEI Li,DOU Haoying,TIAN Xinyu
Chinese General Practice    2020, 23 (7): 884-888.   DOI: 10.12114/j.issn.1007-9572.2019.00.459
Abstract656)      PDF(pc) (1048KB)(2615)    Save
With the continuous increase of the elderly population,a series of problems of supporting the elderly have emerged in China.Among them,the most significant problem is elder abuse,which is more common in rural areas than in cities.Elder abuse not only infringes rights of the elderly,but also seriously affects their physical and mental health.It is more likely to increase the risk of diseases in the elderly and accelerate their death.In general,most researchers categorize elder abuse into five types:physical abuse,mental abuse,economic abuse,negligent care and sexual abuse.Among them,mental abuse is the most common type in rural areas of China,followed by negligent care.In this paper,we elaborate on the current situation and the prevalence of elder abuse in rural areas of China.And then we make a summary of influencing factors of elder abuse,including own factors of the elderly,such as female,the advanced age,low education level,poor physical health,depression and so on,and other factors,such as caregiver stress,family intergenerational support and social factors in order to provide the reference for reducing elder abuse in the future.
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9. Influence of Perceived Family Support and Type D Personality on Depression Prevalence in College Freshmen 
WANG Yanhong,LI Fugui,YE Liyuan,ZHOU Mingjie
Chinese General Practice    2020, 23 (35): 4482-4489.   DOI: 10.12114/j.issn.1007-9572.2020.00.227
Abstract652)      PDF(pc) (1415KB)(643)    Save
Background Attention needs to be paid to the mental health among college freshmen,a group of people who are prone to anxiety,depression and other mental health problems due to adaptation to the environment of the new campus.Type D personality has been found to be a risk factor for depression in this group.However,most previous studies are cross-sectional,and according to which,it is difficult to determine whether personality negatively affects depression or vice versa.Moreover,the role of perceived family support has been ignored in freshmen's adaption to the new campus life.Objective To investigate the role of perceived family support in the relationship between type D personality and depression in college freshmen.Methods This study was carried out with a longitudinal design.By cluster sampling,1 428 freshmen admitted in 2017 were recruited from a college during October to December 2017.They received two questionnaire surveys,one was in October 2017,for investigating their demographic data,prevalence of depression assessed by the 9-item Patient Health Questionnaire (PHQ-9),prevalence of type D personality assessed by the 14-item Type D Scale(DS-14,consisting of negative affectivity and social inhibition domains),and the perceived family support assessed by the perceived family support domain in the Perceived Social Support Scale(PSSS),and another one was in December 2017,for investigating the prevalence of depression using the PHQ-9 again.The first one achieved a response rate of 94.54%(1 403 of the 1 428 cases returned questionnaires and 1 350 gave effective response),and the second one achieved a response rate of 89.12%(1 398 of 1 425 returned questionnaires and 1 270 gave effective response).1 224 cases who effectively responded to both surveys were included for final analysis.Results The prevalence of type D personality,and depression was 16.01%(196/1 224),and 11.68%(143/1 224),respectively.In correlation analysis,the score of negative affectivity or the score of social inhibition was positively associated with the PHQ-9 score(P<0.01).The score of perceived family support was negatively correlated with that of negative affectivity,social inhibition and the PHQ-9 (P<0.01).Logistic regression analysis revealed that both negative affectivity score(β=0.225,P<0.001) and social inhibition score(β=0.077,P<0.001) were positively associated with the PHQ-9 score.Perceived family support played a moderator role in the relationship between the negative affectivity score and PHQ-9 score (β=-0.052,P<0.05),and between the social inhibition score and PHQ-9 score(β=-0.328,P<0.05) .Conclusion Type D personality may be associated with increased risk of depression in college freshmen,but its negative impact may be buffered by perceived family support.
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10. Correlation of Activation with Psychological Distress and Social Support in Chronic Kidney Disease Patients:an Outpatient Follow-up Study 
PAN Yongyi,XIE Wenhong,JIA Ling,HUANG Jingxin,XIE Di,YANG Xiaobing,TAO Xiaolei,ZHAO Hao
Chinese General Practice    2020, 23 (13): 1647-1653.   DOI: 10.12114/j.issn.1007-9572.2019.00.454
Abstract566)      PDF(pc) (1031KB)(1020)    Save
Background Disease spectrum changes as time goes on.Chronic kidney disease(CKD) has become a global public health problem threatening people's health,causing a substantially great burden.The traditional disease-centered model is no longer applicable,the new appropriate chronic disease management model highlights the central role of the patient in disease prevention and treatment.Hence,how to increase patient self-management initiative,namely,patient activation,has become a research hotspot of CKD follow-up management.Objective To explore the correlation of activation with psychological distress and social support in CKD patients with outpatient follow-up management,providing evidence for improving patient activation.Methods A single-center,cross-sectional design with convenience sampling was adopted in the research carried out between August 2017 and October 2018.Participants were totally 301 non-dialysis patients with CKD stages 1-5 who received regular outpatient follow-up from the Clinic of Kidney Disease Center,Nanfang Hospital.They were investigated with Patient Activation Measure(PAM),Kessler Psychological Distress Scale(KPDS) and Social Support Scale.Results The rates with activation levels of 1-4 were 12.3%(37/301),18.3%(55/301),36.5%(110/301),and 32.9%(99/301),respectively,with corresponding mean evaluation score of 45.1(43.2,46.1),51.1(51.1,52.6),61.1(59.4,64.1),and 73.1(68.1,77.0),respectively.The PAM score was negatively correlated with KPDS score(rs=-0.301,P<0.01),but was positively correlated with the total score of social support,scores of objective support,subjective support and utilization of support(rs=0.195-0.359,P<0.01).Conclusion The activation for most CKD patients is not high,indicating that they have no sufficient self-management knowledge and confidence,and skills for health maintenance and promotion.In addition,CKD patients' activation increases with the growth of social support,but decreases with the aggravation of psychological distress.So the activation of such patients during the outpatient follow-up management may be enhanced by psychological rehabilitation interventions and increased social support.
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11. 《The Medical Republic》案例分享——安妮的痛苦:一个虐待老年人的故事
Leon Piterman1,梁艳嫦(译)2,杨辉(译)1
Chinese General Practice    2018, 21 (10): 1151-1153.   DOI: 10.3969/j.issn.1007-9572.2018.10.003
Abstract313)      PDF(pc) (1523KB)(382)    Save
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